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hopeforheather

hopeforheather

Hopeforheather ― http://hopeforheather.wordpress.com

Cowden's Syndrome, brain tumor champion, volunteer,

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Listed: Oct 28, 2012

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Face (Photo of the day 5/22/13)

Face (Photo of the day 5/22/13)

hopeforheather ― Filed under: My Life, Photo of the day, Photography

Tags: My Life, Photo Of The Day, Photography, Cats

Hopeforheather ― 1 day ago

New feature(s)

hopeforheather ― Here at hopeforheather there’s going to be a new section called “Photo of the day”. I’m not quite sure yet how it’s going to come into play though. One of the neat things about this blog is how things have evolved ...

Tags: Cowden's Syndrome, Lhermitte-duclos Disease, Brain Tumor, Conditions And Diseases, Gangliocytoma, Hope

Hopeforheather ― 2 days ago

Pinky #2 (Photo of the day 5/21/13)

Pinky #2 (Photo of the day 5/21/13)

hopeforheather ― Filed under: My Life, Photo of the day, Photography

Tags: My Life, Photo Of The Day, Photography, Flowers, Hope

Hopeforheather ― 2 days ago

New gym gear

hopeforheather ― Filed under: Misc., Photography

Tags: Misc., Photography, Exercise

Hopeforheather ― 6 days ago

If you bet on Cushing’s you would be wrong

hopeforheather ― My primary doctor says I do not have Cushing’s Syndrome. So, while of course this is GREAT news, I’m still uber-frustrated. I was hoping that was the problem, since I didn’t respond to the Desmopressin. After 5 days I felt no...

Tags: Health, Conditions And Diseases, Cushing Syndrome, Hope, Oncology, Rare Disease

Hopeforheather ― 6 days ago

Place your bets

hopeforheather ― Could it be Cushing’s Syndrome? Or… . . . . are we still looking at Diabetes Insipidus? I thought I was done with D.I. I haven’t written a post yet about the protein powder and the polyuria. That will come. Found out today ...

Tags: Health, Conditions And Diseases, Endocrine Disorders, Hope, Prayers

Hopeforheather ― 1 week 8 hr ago

Angelina on my mind

hopeforheather ― I have a lot to say about her decision. And I have a lot to say about how HER choice affects my choice. As I told someone today, “I’m very uncomfortable.” And I was a bit so before this news came out. Ironically, last week my...

Tags: Cowden's Syndrome, Health, Angelina, Angelina Jolie, BRCA Mutation, Breast

Hopeforheather ― 1 week 2 days ago

Photo of the week

Photo of the week

hopeforheather ― Filed under: My Life, Photography

Tags: My Life, Photography, Flowers

Hopeforheather ― 1 week 2 days ago

5 Top Reasons Why My Mom is Great

hopeforheather ― (There are in no particular order and a bit late for Mother’s Day.) I’ve learned so many things from Mom but the main one is that she’s always right (this took me 40 years to figure out – but I finally got it!) She...

Tags: Family, My Life, Blessings, Dooney &amp, Bourke, Mother's Day

Hopeforheather ― 1 week 3 days ago

“Kids say the darndest things”

hopeforheather ― (Mom just said that to me so I decided to use that as my post title.) When my schedule permits I go to my nephew’s Kinder class to volunteer. It’s the best. Really. Besides all the “Kinder Love” they give to me – I ...

Tags: My Life, Volunteering, Blessings, Brain Tumor, Breast, Cancer

Hopeforheather ― 1 week 4 days ago

Breakthrough?

hopeforheather ― In therapy today I realized something. I no longer remember the girl from before July 18, 2011. I don’t remember anything about her. Who she was. What she liked. What she feared. What she hoped to do. That girl is gone. . . ...

Tags: Cowden's Syndrome, Health, Lhermitte-duclos Disease, Brain Tumor, Gangliocytoma, Hope

Hopeforheather ― 2 weeks ago

Photo of the day

Photo of the day

hopeforheather ― Filed under: My Life, Photography

Tags: My Life, Photography

Hopeforheather ― 2 weeks ago

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