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Thriving with Neurofibromatosis

Thriving with Neurofibromatosis

Kristi ― http://www.thrivingwithneurofibromatosis.blogspot.com

A blog about my life and the lives of my children, as we battle Neurofibromatosis. We live a THRIVING life, and hope to inspire as we educate the world!

Avg. Rating: 5.0 out of 5.0 ∙ 2 Reviews ∙ 6 Followers

Listed: Dec 27, 2011

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Excuses Excuses!

Excuses Excuses!

Thriving with Neurofibromatosis ― My FIRST thought, when I was asked to join a kickboxing class was that my tumors were too noticeable...What if I get out there, and someone says something about my bumpy...sweaty body...? ∙ Ya...What if? ∙ See? I am continually ...

Kristi ― 1 week 2 hr 5 min ago

When To Worry...

When To Worry...

Thriving with Neurofibromatosis ― It's the night before 'The BIG Day'....And I am texting my daughter, who is laying in bed scared. I've gone to her, tried to quiet her fears....And even tucked her in. (She's 17 years old...and still won't fall asleep until I have given hugs and...

Kristi ― 1 week 4 days ago

Video Blog

Thriving with Neurofibromatosis

Kristi ― 2 weeks ago

Brain Tumors!

Thriving with Neurofibromatosis ― May is not only Neurofibromatosis Awareness Month...It is also Brain Tumor Awareness Month...And LUCKY US....We have BOTH! (sarcasm intended) ∙ Tumors can happen to anyone. But tumors with NF are - unfortunately, a BIG part of life. ...

Kristi ― 2 weeks 6 days ago

May is Neurofibromatosis Awareness Month

May is Neurofibromatosis Awareness Month

Thriving with Neurofibromatosis ― When you google Neurofibromatosis...Literally thousands of web pages come up, giving you mounds of information...Sometimes....This information is good...Sometimes this stuff leaves me feeling depressed, angry and scared. ∙ THRIVING WITH...

Kristi ― 3 weeks ago

A Little Bit Crazy

A Little Bit Crazy

Thriving with Neurofibromatosis ― Ok...Now that is has been 24 hours - I think I can safely write about our day.... ∙ I was looking forward to this day. It was one of those BIG days, where 5 out of the 6 kids had a doctor appointment. More importantly, this was our yearly ...

Tags: Attitude And NF, NF, Neurofibromatosis

Kristi ― 5 weeks 2 days ago

NF Connections

Thriving with Neurofibromatosis ― Sometimes...You connect with someone in the most unlikely of places. ∙ I typically don't respond to things on Freecycle, or Craigslist....Because as my hubby would say "We have ENOUGH STUFF!" But there are times I just can't help myself. ...

Kristi ― 6 weeks 5 days ago

Out With The Old

Out With The Old

Thriving with Neurofibromatosis ― I have never been considered a "fit" person....I've lost a lot, gained a lot...and yo-yo'd around the scale my entire life. "Sturdy"-"Chubby"-"Fat"....None have been easy. ∙ I went to the gym today...My husband and I try to get there as ...

Kristi ― 7 weeks 2 days ago

Neurofibromatosis Awareness Bracelets

Neurofibromatosis Awareness Bracelets

Thriving with Neurofibromatosis ― I am so excited about telling everyone about the new bracelets that I created! They are a BIG change from my blue/green swirly 'Thriving with Neurofibromatosis' bracelets....And REALLY cool! ∙ 1 Inch Black Silicone, EMBOSSED with Green...

Tags: Neurofibromatosis Bracelets, NF, Neurofibromatosis, Awareness

Kristi ― 7 weeks 3 days ago

She's Happy!

Thriving with Neurofibromatosis ― In a world of MRI's, blood draws, and the constant worry of "what if's"...There is little to smile about. But over the last few weekends, we have had a visitor staying with us, who has brought more than smiles to Bailey's face....He has brought a...

Tags: Freedom Service Dogs, Service Dogs, NF, Neurofibromatosis

Kristi ― 9 weeks 3 days ago

Neurofibromatosis Awareness Bracelets!

Thriving with Neurofibromatosis ― These will be ONE INCH BLACK bracelets with the above lettering! ∙ Order to the left<-------------------------USA Orders only (for now)

Tags: Neurofibromatosis Bracelets, NF Bracelets, Bracelets, Awareness

Kristi ― 10 weeks 1 day ago

The Littlest Tumor Foundation

The Littlest Tumor Foundation

Thriving with Neurofibromatosis ― www.thelittlesttumorfoundation.com ∙ "The Littlest Tumor Foundation is a nonprofit organization dedicated to finding a preventative therapy and treatment for tumor growth in children and providing wellness scholarships to families dealing...

Tags: Tumors, NF, Fund Raising, The Littlest Tumor Foundation, Neurofibromatosis

Kristi ― 11 weeks 1 day ago

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