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 Carly Findlay ― http://carlyfindlay.blogspot.com

My blog is about my life - what it's like to live with a chronic illness - a skin condition called ichthyosis form erythroderma. I write about ichthyosis and a whole heap more - bands, cooking, fashion and social commentary.

Avg. Rating: 4.5 out of 5.0 ∙ 3 Reviews ∙ 14 Followers

Listed: Jan 1, 2012

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Ichthyosis Awareness Month: Shannon and Lauren's story ~ "Our community has no single country, no identified boundaries. Information is shared with a click of the mouse...Hugs have gone virtual." "

Ichthyosis Awareness Month: Shannon and Lauren's story ~ "Our community has no single country, no identified boundaries. Information is shared with a click of the mouse...Hugs have gone virtual." "

Tune into Radio Carly ― Shannon and I know each other through DeDe. She has an eight year old daughter called Lauren who has Harlequin Ichthyosis. DeDe's son Evan is pictured with Lauren below. Shannon writes about the gift of community spirit that comes with being ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 10 hr ago

Ichthyosis Awareness Month: Kitty, Addison and Joella's story ~ "I like to think that people stare because they are struck by such beauty."

Ichthyosis Awareness Month: Kitty, Addison and Joella's story ~ "I like to think that people stare because they are struck by such beauty."

Tune into Radio Carly ― When Kitty sent me her story for the Ichthyosis Awareness Month blog project, she also sent me 40 pictures of Addison and Joella, her gorgeous granddaughters, because she was unable to choose just a few. And then I had trouble choosing! The ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 day ago

Ichthyosis Awareness Month: Jaime's story ~ "I want to inspire and encourage others who might have felt embarrassed or ashamed like I did before by embracing their Ichthyosis."

Ichthyosis Awareness Month: Jaime's story ~ "I want to inspire and encourage others who might have felt embarrassed or ashamed like I did before by embracing their Ichthyosis."

Tune into Radio Carly ― One of the best things about sharing stories about Ichthyosis is how it inspires others to share their story. It's especially heartwarming when I receive emails from people saying that my blog helped them come to terms with their condition. On ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 day ago

Ichthyosis Awareness Month: Valerie's story ~ " I am thankful that all that pain and suffering has made me the person that I am today."

Ichthyosis Awareness Month: Valerie's story ~ " I am thankful that all that pain and suffering has made me the person that I am today."

Tune into Radio Carly ― Valerie wrote to me in August last year, thanking me for my blog. She told me about her and her brother who both have Ichthyosis, and she wrote "on days like today when my skin is really flared up and the pain is unbearable, reading about you is a...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 2 days ago

Ichthyosis Awareness Month: Friends forever - Lynsey and Cassie's story

Ichthyosis Awareness Month: Friends forever - Lynsey and Cassie's story

Tune into Radio Carly ― About 18 months ago I received an email from a young woman in America. Her name was Lynsey and she had found my blog. Her email was titled 'Maybe you can help', and in it she told me about her best friend Cassandra (Cassie) who has Netherton's...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 3 days ago

Ichthyosis Awareness Month: Emma Carolyn's story ~ "I wouldn't change having Ichthyosis, because it's who I am and it's made me unique."

Tune into Radio Carly ― When I put calls out for contributions to the Ichthyosis Awareness Month blog project, I asked people to tell me about their life as a whole - and I wanted to showcase some of the incredible talents that people have. Today Emma Carolyn shares her...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 4 days ago

Ichthyosis Awareness Month: My Dad's story ~ "It was never easy being the father of a girl with special needs."

Ichthyosis Awareness Month: My Dad's story ~ "It was never easy being the father of a girl with special needs."

Tune into Radio Carly ― I have been moved by every submission for the Ichthyosis Awareness Month project, but my Dad's moved me most - moved me to tears in fact. My Dad has written of the difficulties he had with parenting me. It saddened me to read that I had a hard ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Family, Skin

Carly Findlay ― 5 days ago

Ichthyosis Awareness Month: Peggy's story about Andrew and Aaron, her adult sons

Ichthyosis Awareness Month: Peggy's story about Andrew and Aaron, her adult sons

Tune into Radio Carly ― Peggy has two adult sons affected with Ichthyosis. She is a key member of the online Ichthyosis community, always championing against discrimination and ignorance online. She writes about her sons, Andrew and Aaron, here. (Peggy's sons Andrew ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 5 days ago

Ichthyosis Awareness Month: Diana's story ~ "I tell my daughter what being a great friend to someone really means."

Ichthyosis Awareness Month: Diana's story ~ "I tell my daughter what being a great friend to someone really means."

Tune into Radio Carly ― Today Diana Gilbert shares her story for Ichthyosis Awareness Month. Like me, she was initially diagnosed with Ichthyosis form Erythroderma and later diagnosed with Netherton's Syndrome. Diana had a hard time growing up, but now leads a very full...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 6 days ago

Ichthyosis Awareness Month: Lucia's story ~ looking at the Wonders of Netherton's Syndrome.

Ichthyosis Awareness Month: Lucia's story ~ looking at the Wonders of Netherton's Syndrome.

Tune into Radio Carly ― My friend Jeff told me about Lucia, a fellow Aussie, when she was a tiny girl. Her Mum, Francesca, and I have connected on Facebook recently. I love Francesca's piece - she has certainly found the positives in Ichthyosis, and that's very uplifting! ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 10 hr ago

Ichthyosis Awareness Month: Nutritional advice from a dietician.

Ichthyosis Awareness Month: Nutritional advice from a dietician.

Tune into Radio Carly ― Today my good friend, blogger and dietician Heidi will be providing some nutritional advice for people with Ichthyosis. I gave Heidi an example of the food I eat on an average day (the food I cook from scratch rather than takeaway or restaurant...

Tags: Ichthyosis, Ichthyosis Awareness Month, Heidi, Nutrition, Food

Carly Findlay ― 1 week 1 day ago

Ichthyosis Awareness Month: Maria's story ~ "When I’m in the arms of a stranger, dancing...I can forget that I look different and just be me."

Ichthyosis Awareness Month: Maria's story ~ "When I’m in the arms of a stranger, dancing...I can forget that I look different and just be me."

Tune into Radio Carly ― Like me, Maria has Netherton's Syndrome. We have been in contact via social media for more than two years, and she approached me to write for the Swedish Ichthyosis Magazine - my article is in the January 2013 issue. When I asked Maria to write a...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 2 days ago

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