Tune into Radio Carly

Ichthyosis Awareness Month: Valerie's story ~ " I am thankful that all that pain and suffering has made me the person that I am today."

Tune into Radio Carly ― Valerie wrote to me in August last year, thanking me for my blog. She told me about her and her brother who both have Ichthyosis, and she wrote "on days like today when my skin is really flared up and the pain is unbearable, reading about you is a...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 2 days ago

Ichthyosis Awareness Month: Friends forever - Lynsey and Cassie's story

Tune into Radio Carly ― About 18 months ago I received an email from a young woman in America. Her name was Lynsey and she had found my blog. Her email was titled 'Maybe you can help', and in it she told me about her best friend Cassandra (Cassie) who has Netherton's...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 3 days ago

Ichthyosis Awareness Month: Emma Carolyn's story ~ "I wouldn't change having Ichthyosis, because it's who I am and it's made me unique."

Tune into Radio Carly ― When I put calls out for contributions to the Ichthyosis Awareness Month blog project, I asked people to tell me about their life as a whole - and I wanted to showcase some of the incredible talents that people have. Today Emma Carolyn shares her...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 4 days ago

Ichthyosis Awareness Month: My Dad's story ~ "It was never easy being the father of a girl with special needs."

Tune into Radio Carly ― I have been moved by every submission for the Ichthyosis Awareness Month project, but my Dad's moved me most - moved me to tears in fact. My Dad has written of the difficulties he had with parenting me. It saddened me to read that I had a hard ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Family, Skin

Carly Findlay ― 1 week 5 days ago

Ichthyosis Awareness Month: Peggy's story about Andrew and Aaron, her adult sons

Tune into Radio Carly ― Peggy has two adult sons affected with Ichthyosis. She is a key member of the online Ichthyosis community, always championing against discrimination and ignorance online. She writes about her sons, Andrew and Aaron, here. (Peggy's sons Andrew ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 5 days ago

Ichthyosis Awareness Month: Diana's story ~ "I tell my daughter what being a great friend to someone really means."

Tune into Radio Carly ― Today Diana Gilbert shares her story for Ichthyosis Awareness Month. Like me, she was initially diagnosed with Ichthyosis form Erythroderma and later diagnosed with Netherton's Syndrome. Diana had a hard time growing up, but now leads a very full...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 1 week 6 days ago

Ichthyosis Awareness Month: Lucia's story ~ looking at the Wonders of Netherton's Syndrome.

Tune into Radio Carly ― My friend Jeff told me about Lucia, a fellow Aussie, when she was a tiny girl. Her Mum, Francesca, and I have connected on Facebook recently. I love Francesca's piece - she has certainly found the positives in Ichthyosis, and that's very uplifting! ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 2 weeks ago

Ichthyosis Awareness Month: Nutritional advice from a dietician.

Tune into Radio Carly ― Today my good friend, blogger and dietician Heidi will be providing some nutritional advice for people with Ichthyosis. I gave Heidi an example of the food I eat on an average day (the food I cook from scratch rather than takeaway or restaurant...

Tags: Ichthyosis, Ichthyosis Awareness Month, Heidi, Nutrition, Food

Carly Findlay ― 2 weeks 1 day ago

Ichthyosis Awareness Month: Maria's story ~ "When I’m in the arms of a stranger, dancing...I can forget that I look different and just be me."

Tune into Radio Carly ― Like me, Maria has Netherton's Syndrome. We have been in contact via social media for more than two years, and she approached me to write for the Swedish Ichthyosis Magazine - my article is in the January 2013 issue. When I asked Maria to write a...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 2 weeks 2 days ago

Ichthyosis Awareness Month: Gina's story ~ "use the negatives to become stronger every day."

Tune into Radio Carly ― Gina Messer is 20 years old from Sacramento, California. I am friends with Gina on Facebook and I always admire how she lives life to the fullest. I have also enjoyed getting into debates about representation of Ichthyosis in the media with her - ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 2 weeks 3 days ago

Ichthyosis Awareness Month: Ethan's story ~ "I sometimes forget about my skin being different" ~ wisdom from a seven year old.

Tune into Radio Carly ― The perspective children have about their situations astounds me. There's a factual explanation, plus a sense of the bigger picture as well as hope for improvement in their lifetime. Today Ethan, aged seven, writes his story. Some of the things ...

Tags: Ichthyosis, Ichthyosis Awareness Month, Skin

Carly Findlay ― 2 weeks 4 days ago

Ichthyosis Awareness Month: My Mum's story.

Tune into Radio Carly ― My Mum is the best. She's been my carer, my guide and my best friend. And I am continually thankful to her and Dad for for giving me such a wonderful life and never stopping me from doing anything. I can't imagine what it would have been like for...

Tags: Ichthyosis, Ichthyosis Awareness Month, Family, Skin

Carly Findlay ― 2 weeks 5 days ago

Carly Findlay (Carlyfindlay) uses Bloggers to connect with peer Bloggers. Join the largest Bloggers Community to follow Carly Findlay (Carlyfindlay), and build your audience now!

Ichthyosis Awareness Month: Valerie's story ~ " I am thankful that all that pain and suffering has made me the person that I am today."

Ichthyosis Awareness Month: Friends forever - Lynsey and Cassie's story

Ichthyosis Awareness Month: Emma Carolyn's story ~ "I wouldn't change having Ichthyosis, because it's who I am and it's made me unique."

Ichthyosis Awareness Month: My Dad's story ~ "It was never easy being the father of a girl with special needs."

Ichthyosis Awareness Month: Peggy's story about Andrew and Aaron, her adult sons

Ichthyosis Awareness Month: Diana's story ~ "I tell my daughter what being a great friend to someone really means."

Ichthyosis Awareness Month: Lucia's story ~ looking at the Wonders of Netherton's Syndrome.

Ichthyosis Awareness Month: Nutritional advice from a dietician.

Ichthyosis Awareness Month: Maria's story ~ "When I’m in the arms of a stranger, dancing...I can forget that I look different and just be me."

Ichthyosis Awareness Month: Gina's story ~ "use the negatives to become stronger every day."

Ichthyosis Awareness Month: Ethan's story ~ "I sometimes forget about my skin being different" ~ wisdom from a seven year old.

Ichthyosis Awareness Month: My Mum's story.

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