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Hlhs

Life and Loss

The Real Life of a Redhead ― I've been writing more. ∙ I've needed to be writing more. ∙ For some reason the struggle seems to be getting the best of me. ∙ Today, as I scrolled through Facebook, I was once again reminded of the fragility of life. ∙ ...

Tags: CHD, HLHS, Death, Life, Grief, Gods Will

Fierceandfiesty ― 1 week 3 days ago

Mark Warner Active Family Challenge: Week 1: Spin!

Mark Warner Active Family Challenge: Week 1: Spin!

Diary of the Evans-Crittens ― When Mark Warner invited me to take part in their Active Family Challenge I jumped at the chance. ∙ One of my New Year Resolutions was to get outdoors as often as I can with the children. I think I am doing well with this. Each week I have ...

Tags: CHD, #MWActiveFamily, Sports, HLHS, Bike Mobility, #MarkWarnerActiveFamily

Claire Evans ― 2 weeks 1 day ago

18a. Savannah Rae Curnock

18a. Savannah Rae Curnock

Millie ― Savannah 4th January 2013 – 2nd April 2013 Savannah was a little girl full of joy, She had a beautiful determination that no one could destroy. She came into our lives and so many lessons were taught, She conquered almost anything, with a ...

Tags: Health, Aortic Arch, BCH, CCTGA, Dave Barron, Hlhs

Mills ― 3 weeks 6 days ago

The day I got to meet an important Minister- Edward Timpson, Minister for SEN & Disabilities

The day I got to meet an important Minister- Edward Timpson, Minister for SEN & Disabilities

Diary of the Evans-Crittens ― Since I've started Blogging about our family life, I have become aware of a new world. This previously hidden World is full of opportunity and adventure...but most of it, unfortunately for, me takes place in London. ∙ Whilst there are many...

Tags: Westminster, Edward Timpson, HLHS, Special Educational Needs, Danny, Disabilities

Claire Evans ― 7 weeks ago

A Taste of What Should Have Been

The Real Life of a Redhead ― I've been babysitting during the day. At any given time, I have quite a few children in our home that are not my children. I care for them, love them, and treat them like my own. ∙ For the most part, I enjoy babysitting, but some days it...

Tags: Friendship, Hannah, HLHS, Healing, Caleb, Luke

Fierceandfiesty ― 14 weeks ago

It hits

The Real Life of a Redhead ― It hits me sometimes. ∙ There are no words to describe the pain and sadness that I feel. ∙ I miss him. ∙ I miss him so damn much. ∙ It's hit. The sadness has come. And I can't hold back the tears.

Tags: CHD, HLHS, Death, Pictures, Grief, Joshua

Fierceandfiesty ― 37 weeks ago

1a. Millie’s Timeline

Millie ― Welcome to my timeline. This is here to produce a chronological order of my life, diagnoses, surgeries, admissions, discharges etc. Hopefully each date will be linked to the relevant section of my site. Timeline Feb 2011:20 week scan. Found out I ...

Tags: Health, Aortic Arch, CCTGA, Dilv, Hlhs, Hrhs

Mills ― 42 weeks ago

2 years ago

The Real Life of a Redhead ― Two years ago, we were exactly one month away from delivering this baby into this world. ∙ Just two years ago, we were trying to figure out how we were going to survive, what we were going to do, where we were going to go, and how we were...

Tags: Trust, HLHS, Death, Grief, Joshua, Fierce And Fiesty

Fierceandfiesty ― 44 weeks ago

Speak His Name. Remember Him

Speak His Name. Remember Him

The Real Life of a Redhead ― It's hard for me to believe that we should have an almost 2 year old running around our house. ∙ In 1 month, Joshua should be celebrating his 2nd birthday. ∙ These past 2 years have brought healing, but they have also brought ...

Tags: CHD, HLHS, NICU, Healing, PICU, Pictures

Fierceandfiesty ― 45 weeks ago

2 Years Ago

The Real Life of a Redhead ― April 20. ∙ It's been two years. ∙ Two long, fricking years. ∙ Two years ago, we sat in a waiting room in Indianapolis, feeling him dance around in my belly. ∙ Two years ago, our world came at a halt. ∙ Two ...

Tags: Dr. Appointments, CHD, HLHS, Pictures, Grief, Gods Will

Fierceandfiesty ― 20 Apr, 12

A Light in the Darkness

The Real Life of a Redhead ― As I mentioned a few posts ago, we are thinking about moving again. ∙ Right now, we are renting our current home, and while we love it, it is literally 15 minutes from everywhere (it's a geographical oddity!!! -Oh Brother Where Art Thou...

Tags: Cancer, CHD, House, Dad, HLHS, Healing

Fierceandfiesty ― 19 Apr, 12

2f. The Problems – Pulmonary Artery Stenosis (Left Arterial Branch)

Millie ― Pulmonary artery stenosis is, in layman’s terms, a narrowing of one or both of the pulmonary arteries. The pulmonary arteries take unoxygenated blood from the heart to the lungs where it can then pick up oxygen again. It is typically a CHD...

Tags: Health, Aortic Arch, CCTGA, Dilv, Hlhs, Millie Healey

Mills ― 24 Feb, 12

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