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Day 98: 9.30AM is NOT Midday!

Day 98: 9.30AM is NOT Midday!

The Kiwi + His Girl + Their Little Swish ― Why do we bother making an appointment to see a doctor when the doctor is NEVER on time? ∙ Seriously, Dr Barbaric is the world's worst time manager I have ever had the displeasure of meeting and/or working with. Of all the times we have ...

Tags: SCID, Family, Sydney

Gloria Hill ― 5 weeks 4 days ago

Day 97: Our Big Day In

Day 97: Our Big Day In

The Kiwi + His Girl + Their Little Swish ― With a sigh of relief, I know the light at the end of the tunnel is getting brighter by the day. ∙ Unfortunately, someone forgot to remind the little man to just hang in there. Sean slept poorly overnight, waking a few times. Jonathan and ...

Tags: SCID, Family, Sydney

Gloria Hill ― 20 weeks ago

Day 96: Sean Is Eating Again!

Day 96: Sean Is Eating Again!

The Kiwi + His Girl + Their Little Swish ― 18 months ago, we were holding a brand new baby. Today, that baby has turned into a toddler. ∙ A toddler who is full of life, and giggles, and smiles, and cuddles and kisses. ∙ A toddler who is full of mischief, and cheeky glints in...

Tags: SCID, Family, Sydney

Gloria Hill ― 30 weeks ago

Day 94: A Much Better Day

Day 94: A Much Better Day

The Kiwi + His Girl + Their Little Swish ― TGIF!!! ∙ Today was a much much better day. Sean was feeling better, behaving better, and eating better. I was so thankful for this lift in his mood. I wasn't sure how much more of his bad moods I could take. ∙ Sean wasn't so ...

Tags: SCID, Family, Sydney

Gloria Hill ― 30 weeks ago

Day 95: Blissful Pyjama Day

Day 95: Blissful Pyjama Day

The Kiwi + His Girl + Their Little Swish ― Can I say again how much I love blissful pyjama days? ∙ We did absolutely nothing today. ∙ All day long. ∙ Nothing at all. ∙ We stayed in our pyjamas all day and did nothing. ∙ Nothing at all. ∙ If you ...

Tags: SCID, Family, Sydney

Gloria Hill ― 30 weeks ago

Day 93: Everyone Out Of Sorts

Day 93: Everyone Out Of Sorts

The Kiwi + His Girl + Their Little Swish ― When will things go back to normal? ∙ Everyone in our house was feeling out of whack. The only explanation I could come up with was that our routines were out of whack after our week in hospital. ∙ We had a really bad night last ...

Tags: SCID, Family, Sydney

Gloria Hill ― 45 weeks ago

Day 92: The Adults Are Weary

Day 92: The Adults Are Weary

The Kiwi + His Girl + Their Little Swish ― The past week was hard. And things threatened to get a bit harder today. ∙ Both Jonathan and I were feeling the pinch. We were both run down, and fatigued, and hoped we weren't getting sick. Jonathan woke with a sore throat and a bit of ...

Tags: SCID, Family, Sydney

Gloria Hill ― 45 weeks ago

Day 91: Back to Hospital for Clinic

Day 91: Back to Hospital for Clinic

The Kiwi + His Girl + Their Little Swish ― After spending a week in hospital, we had to go back for Clinic. I will never know why we had to go back. ∙ We arrived at C2N at 8am, and the nurses all asked after Sean. They all asked when we were discharged from hospital, and when I ...

Tags: SCID, Family, Sydney

Gloria Hill ― 46 weeks ago

Day 90: Home Again, Finally!

Day 90: Home Again, Finally!

The Kiwi + His Girl + Their Little Swish ― We're home! ∙ We're home! ∙ We're home! ∙ So long, Kid Vampire! ∙ So long, endless hours of screaming and screeching! ∙ So long, idiot nurses! ∙ So long, horrible sofa bed! ∙ So long, nasty ...

Tags: SCID, Family, Sydney

Gloria Hill ― 46 weeks ago

Day 89: Still Stuck in Hospital

Day 89: Still Stuck in Hospital

The Kiwi + His Girl + Their Little Swish ― There was no chance of going home today. And I had so wanted to be home in my own bed tonight. ∙ Sean's haemoglobin levels were low, as were his magnesium levels, so he needed transfusions of both. The doctors wanted to keep Sean ...

Tags: SCID, Family, Sydney

Gloria Hill ― 46 weeks ago

Day 88: A Whole Day of Nothing

Day 88: A Whole Day of Nothing

The Kiwi + His Girl + Their Little Swish ― Hospitals are funny places. You lose track of time when you are in hospital. Even more so when you are stuck in an isolation room with no windows to the outside world. ∙ Absolutely nothing happened today. Well, that's not exactly true....

Tags: SCID, Family, Sydney

Gloria Hill ― 46 weeks ago

Day 87: Two Steps Forward, One Giant Step Back

Day 87: Two Steps Forward, One Giant Step Back

The Kiwi + His Girl + Their Little Swish ― A much better day was had today, as we all managed to get some much needed sleep. ∙ Amazingly, Kid Vampire slept last night. Yes, he slept, at night, and pretty much through the night. The long sleep he had during yesterday must have whet...

Tags: SCID, Family, Sydney

Gloria Hill ― 46 weeks ago

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