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Special Needs

Raising awareness of children’s conditions so rare, they’re undiagnosed.

Special Needs Jungle ― Tania writes: Recently, when Debs & I went to Westminster, we met Renata Blower, a Mum who blogs about her life as the parent of a child with an undiagnosed rare disease. I was impressed by Renata immediately, as she has the tenacity, courage ...

Tags: Disability, Rare Disease, Special Needs, Eurordis, Genetic Alliance, Just Bring The Chocolate

TaniaLT ― 5 weeks 6 days ago

My son and his literal world

My son and his literal world

Special Needs Jungle ― Debs writes…. My eldest son, K lives in a very literal world and we spend half of our day trying to watch what we say, and the other half paying for the fact that we forgot. “Watching what we say” – there you go, that ...

Tags: Autism &amp, Asperger's, Personal Posts, Special Needs

TaniaLT ― 6 weeks ago

No more Dialysis!!

tiffani goff at home ― Another great day on the Tiara front. After a few large diapers the Renal team decided she didn’t need anymore dialysis. Yay, so happy! She has yet to eat but has been drinking everything in sight. They reduced her oxygen to 3 liters and...

Tags: Daily Life With Tiara, Hospital Stays, Tiara &amp, Special Needs

Tiffani Goff At Home ― 6 weeks ago

Still more improvement…

tiffani goff at home ― Today was another good day. She urinated enough that they decided to skip dialysis today and her creatinine was back in the normal range, which is a huge improvement. Hoping and praying they are going to move the dialysis machine out of her room...

Tags: Daily Life With Tiara, Hospital Stays, Tiara &amp, Special Needs

Tiffani Goff At Home ― 6 weeks 1 day ago

Coming soon!

The Peak Pages ― Peak City Publishing is excited to be bringing you a brand new book series by Hugh Willard, a Holly Springs, NC native. ∙ The Goodwill Vultures Club: A Day of Heroes ∙ Written by Hugh Willard. Cover Art by Derrick Eason. ∙...

Tags: Special Needs, Loyalty. Benefits Of Pet Therapy, Special Needs Kids, Holly Springs, The Goodwill Vultures Club, Love

Peak City Publishing ― 6 weeks 1 day ago

A good day!!!!

tiffani goff at home ― Today started out great because when I woke up I realized they had decreased the ventilator settings during the night and they were the lowest they have been and her oxygen levels were still good. I knew it was the right day to take her off the...

Tags: Daily Life With Tiara, Hospital Stays, Tiara &amp, Special Needs

Tiffani Goff At Home ― 6 weeks 2 days ago

Lovely Lemons

Special Needs Homeschooling ― How to use lemons to help your sensory intense child! Lemons are so strong in color, flavor, and taste that they can fufill a sensory seekers needs and help to curb a sensory defensive child’s... ∙ Are you homeschooling or thinking ...

Tags: Sensory Issues, Autism, Sensory Defensive, Sensory Integration Disorder, Sensory Seeker, Special Needs

HeatherL ― 6 weeks 2 days ago

No Other Option But to Homeschool

Special Needs Homeschooling ― Parents come to homeschooling from many different angles. Some were home schooled and desire to continue the same learning with their child. Others come to the decision to homeschool through research... ∙ Are you homeschooling or thinking...

Tags: General Homeschooling, Homeschool, Homeschooling, Special Needs

HeatherL ― 6 weeks 2 days ago

Parent Carer Forums

Special Needs Jungle ― Debs writes…. Tania and I are both co-chairs of Parent Carer Forums and we do mention them quite a lot. Tania Co-Chairs Family Voice Surrey with the lovely Angela. Angela shared her experience of meeting Mr T with us on Valentine’s ...

Tags: Parent-carer Forums, SEN Reform, Special Educational Needs, Special Needs, Disability, Parent-carer Forum

TaniaLT ― 6 weeks 2 days ago

Tiara update, she is still on a ventilator….

tiffani goff at home ― So once again Tiara wasn’t able to get extubated today. We finally got into her new room at 1am last night and I was woken up at 6am for x-rays to learn Tiara had spiked a temperature to 104 degrees. What? Now what is going on? The ...

Tags: Daily Life With Tiara, Hospital Stays, Tiara &amp, Special Needs

Tiffani Goff At Home ― 6 weeks 3 days ago

How to deal with a diagnosis, in three easy steps

halfpastnormal ― How to deal with a diagnosis, in three easy steps: Step 1 Panic Step 2 Realize the world is not coming to an end and start to find out more about the diagnosis. What does it really mean? Read, talk … Continue reading →

Tags: DisABILTY, Parenting, Dealing With A Diagnosis, Family, Parenting, Special Needs

specialneedmom ― 6 weeks 4 days ago

Pathological Demand Avoidance group bids for charity status

Pathological Demand Avoidance group bids for charity status

Special Needs Jungle ― The most popular post on Special Needs Jungle continues to be about the condition Pathological Demand Avoidance Last week I met Deborah Rourke, who wrote the post – it turns out she lives close to me so I hope we will see a lot more of each...

Tags: Pathological Demand Avoidance, Autism, Deborah Rourke, SEN, Special Needs

TaniaLT ― 6 weeks 4 days ago

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